Usher syndrome is the most common cause of combined deafness and blindness. Around 400,000 people in the world are affected by this genetic disorder, with an estimated 50,000 people in the U.S. alone. There is currently no cure for Usher syndrome. The Usher Syndrome Coalition needs your help to change this.

We believe the key to finding viable treatments for Usher syndrome is the development of a strong Usher syndrome community, our #USHFAMILY. 

The global Usher Syndrome Registry, the international Family Network, research symposiums, family conferences and efforts to highlight Usher syndrome research on Capitol Hill are a few examples of the steps we are taking to build the Usher syndrome community, a source of pride for many with Usher syndrome.

As a member of the #USHFAMILY you can help us dramatically accelerate research while raising awareness about the most common cause of combined deafness and blindness.

Donations help us support and educate families, expand the Usher Syndrome Registry and use the power of an energized community to raise awareness and increase funding for Usher syndrome research.

Today, your generous donation can help us bridge the gap between researchers and families in need. You are the key to finding a cure.